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RSD Alert - International eMagazine for the RSD community
Information about Reflex Sympathetic Dystrophy Syndrome, including personal
experience, data and links to support groups. For sufferers and all active people ...
Becker Muscular Dystrophy
Serves as a place for persons with Becker Muscular Dystrophy to exchange information
and communicate with others about the disease.
Duchenne Muscular Dystrophy - Jesse's Journey - The Foundation for ...
A registered charitable organization raising funds for research in gene and cell
based therapies focusing on Duchenne muscular dystrophy and other neuromuscular ...
Reflex Sympathetic Dystrophy Association of America
Information site. Promotes great awareness for Reflex Sympathetic Dystrophy.
Includes video, news clips and links.
FacioScapuloHumeral (FSH or FSHD) Muscular Dystrophy and resources ...
Information about FSHD, plus extensive links for organizations, products and
services to copy with disabilities.
Help Solve the 2nd Most Prevalent Muscular Dystrophy! The ...
The FSH Society address issues and needs related to FacioScapuloHumeral Muscular
Dystrophy (FSHD).
Myotonic Dystrophy and Muscular Dystrophy Information at The Logan ...
Dedicated to educating potential parents about Myotonic Dystrophy and genetic
testing. Information about fundraising, both for research and to assist people who ...
Muscular Dystrophy Association - Australia
The Home of MDA and related information on this disease.
Canadian RSD Network
Non-profit, education and support group offering archival material, news, stories
of hope and links.
Myotonic dystrophy
A discussion about myotonic dystrophy, when it occurs, symptoms and the gene.
Parent Project UK - Fighting for a cure for Duchenne Muscular ...
A charity set up by parents and supporters of boys with Duchenne and Becker
Muscular Dystrophy that promotes research to find a cure or viable treatments.
Muscular Dystrophy Campaign
Information about muscular dystrophy. Detailed information about duchenne, becker
and many other neuromuscular conditions. Large text version of site available.
©Muscular Dystrophy Ireland
Voluntary organization in Ireland which provides support for people with muscular
dystrophy and their families.
Reflex Sympathetic Dystrophy UK Online Support Group
Aimed at patients, carers, friends, relatives and professionals. Includes information,
links, stories, hints, tips and an email group at Yahoo.
Facio Scapulo Humeral Muscular Dystrophy (FSH-MD) Support Group
Patients, families and carer run group, supporting those with FSH-MD. Disease
information, newsletters, events and message board on-line.
Muscular Dystrophy Association (South Australia)
Explanation of support services for all persons with muscular dystrophy and
neuromuscular disorders.
Duchenne muscular dystrophy - General Practice Notebook
Clinically-oriented information.
Muscular Dystrophy Canada
Dystrophie musculaire Canada - -
Neurovascular Dystrophy in Feet due to Frostbite
Case History: major post traumatic Neurovascular Dystrophy in feet and lower legs
resulting from severe frostbite, cold injury and toe amputation.
MUSCULAR DYSTROPHY - "A GUIDE FOR PARENTS" index
This booklet is for people with someone in their family who has Duchenne muscular
dystrophy. Includes an overview, medical and surgical care, general care, ...
Muscular Dystrophy Campaign
Muscular Dystrophy Campaign for Government funding. This has information about
efforts to increase government spending for muscular dystrophy in the UK.
The Meaning of Muscular Dystrophy
Learn what it is, the different types, causes, how to help someone with MD, and
what it's like.
National Registry of Myotonic Dystrophy and FSHD Patients and ...
Connecting researchers and patients. Participation, purpose, investigators,
personnel and contact information.
Muscular Dystrophy
Learn about different types of MD, the causes, and what it's like for teens who
have it.
MYOTONIC DYSTROPHY/CONGENITAL MYOTONIC DYSTROPHY: Contact a Family ...
An article about myotonic dystrophy, its characteristics and inheritance patterns.
American RSDHope
A non-profit organization providing information for medical professionals, patients
and families. Features newsletters, submitted poetry, and details of support ...
Muscular Dystrophy Association Singapore (MDAS)
Muscular Dystrophy Association Singapore (MDAS) is a self-help organization
committed to uplift the lives of people with Muscular Dystrophy.
International Reflex Sympathetic Dystrophy Foundation
Delivers information resources, puzzles, studies, articles, surveys and FAQS.
GeneReviews: Myotonic Dystrophy Type 1
A summary of myotonic dystrophy, the diagnosis, clinical description, differential
diagnosis, management, genetic counseling and resources.
Muscular Dystrophy Family Foundation ® - A Season For Thanks
Nonprofit foundation that provides adaptive equipment and emotional support to
individuals and families affected by any one of 40 neuromuscular diseases.
Reflex Sympathetic Dystrophy Syndrome Association of California
Details about this nonprofit organization that provides medical information and
resources on RSD and CRPS.
Reflex Sympathetic Dystrophy Syndrome Database
A completely searchable database of all known RSD/CRPS sites from many countries.
Fuchs' Dystrophy Home Page
Information and research about the inherited eye disorder.
Parent Project Muscular Dystrophy: Latest News
Parent Project Muscular Dystrophy is a not-for-profit organization founded in
1994 by parents of children with Duchenne and Becker Muscular Dystrophy.
Difficult to Manage Pain Of Reflex Sympathetic Dystrophy
Article explaining possible treatments.
